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HD is a genetically caused brain disorder that causes uncontrollable bodily movements and robs people's ability to walk, talk, eat, and think. The final result is a slow, ugly death.

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I was recently invited to talk about my column on Help 4 HD Live!

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The host, Lauren Holder, asked me how the revelation that I am a gene carrier has affected my relationships. My friends were sad to learn my news, but remain incredibly supportive. I also have been fortunate with my romantic relationships.

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Right after I received the confirming that I was a gene carrier, I started to see someone new. I mentioned in a column how caring he was when I told him about my status on a particularly rough day. I am bluntly honest in my personal life. I discovered that my extreme honesty — as some might call it — was an unusual trait when on our third date, I showed my now-boyfriend the Netflix special with comedian Daniel Sloss where he talks about the futility of love.

Until this year, the risk of my being gene-positive was merely a chance. Now, with my confirmation as a gene carrier, anyone I date no longer has that luxury. It is a foregone conclusion that one day I will experience symptoms.

My dating experience as a huntington’s gene carrier

When I started writing this column, I wanted to understand how he felt about that part of me. He usually proofre my column before I submit it. It would be unlike me to avoid dating, partly because I like attention too much to remain single. Eventually, someone would be my caretaker.

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If you think about it, in all long-term relationships one person will be a caregiver at some point. Life is fragile. I could need someone to take care of me in a year or 10 years from now. Maybe I will be their caretaker before they even get the chance to be mine. Until then, I will continue to live my life — and that includes dating.

It does not provide medical advice, diagnosis, or treatment.


This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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Never disregard professional medical advice or delay in seeking it because of something you have read on this website. Fill in the required fields to post. Envelope icon Subscribe to our newsletter Get regular updates to your inbox. Your .

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Share this article: Share article via Copy article link. Print This. About the Author Alexus Jones Alexus is a columnist at BioNews — the publisher of this site — where she writes about her. Alexus is all too familiar with the disease: her grandfather and mother have it, and she recently learned she does, too.

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Tags datingdisclosing gene statusgene-positive diagnosis. Comments Lauren Holder As always, I love your posts! Alexus Jones Hi Lauren! Thank you for reading!

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It was truly an honor to be on your show! Leave a comment Fill in the required fields to post. Your Name.

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Your Comment. Recommended reading. July 27, News by Shayna Korol.